One minute she’s with us and then the next minute she’s gone. All is well when she gets in the car after school. I hand her a snack and she tells us she earned a sticker. We make our way to Target and the mood shifts. I can see the manic look in her eyes and … Continue reading Sometimes she leaves us…
This Friday morning, Layla will have another appointment. It is the opinion of her neurologist, her primary care doctor, her occupational therapist, her teacher, and Kevin & myself, that there is something more going on than her sensory issues. While she has made worlds of progress with self regulating when dealing with sensory stimuli and … Continue reading Recent News on Layla
Layla, When you came to stay, there were these nights. Ones that I tend to forget. Then, these reminiscent moments hit me out of nowhere and I remember every second. Daddy was working a lot of late shifts, not getting home until early morning hours. And it was just me and you, kiddo! We were … Continue reading “Sometimes when you sleep, I watch you dream and I dream, too…”
Tomorrow is Layla’s first day of school. 5 years ago, it was a hot summer day (much like today). Kevin and I sat together, hands held tightly, with a 2-week-old in between us. Knowing there was nothing else to do, we prayed. Hard. The kind of prayer that is so full of the deep longing … Continue reading We’ve come full circle.
It’s amazing to me, how often the ordinary can become extraordinary. A quick trip, a random smile, a simple hello. They can lead to these big moments. We think it’s going to just be a regular day with regular errands but God has a way of even using our mundane tasks for His glory. My … Continue reading …because my filling fell out.
Today was Layla's 6 month neurological follow up. I've noticed that we've slowly but surely grown into a family that is accustomed to having some special needs. I remember in the beginning I got nervous a lot. I cried with good or bad news. I refused to acknowledge that Layla had differences and delays. It's … Continue reading Layla’s Neurology Appointment
I'm so thankful for a diligent doctor! We already got Layla's tests results back and they are NORMAL! God is so faithful to us! This means no cerebral palsy and no spina bifida! So what's next? Her diagnosis is now "encephalopathy" which is a broad term that basically just means disorder and disease of the … Continue reading UPDATE!