One minute she’s with us and then the next minute she’s gone.
All is well when she gets in the car after school. I hand her a snack and she tells us she earned a sticker. We make our way to Target and the mood shifts. I can see the manic look in her eyes and my stomach drops. She is defiant and loud. Her movements are brisk, her eyes refusing to make contact with mine. She’s gone.
She’s not Layla anymore. She can’t be reasoned with or spoken to. She doesn’t even hear us. She just screams. We leave and she won’t keep her seatbelt on. Out of desperation, Kevin puts her in the car seat with the 5 point harness. He hopes she won’t take that off. She’s not safe. She scratches him and yells. I get in the seat next to her and wrap my arms around her tightly as Kevin drives away. I squeeze her arms close to me so she feels some sense of security in the midst of her thrashing around and I whisper “Shhhhhhhh” into her ear over and over. Her body goes limp and she cries. I cry, too. And I silently thank God that her Occupational Therapist gave me the right tools to do something. I silently thank God that it worked. She doesn’t know why it happens. We talk about all the better things she can do when she starts to go to that place. She tells me her brain talks to her and sometimes it says bad things. She is confused and sad and we are exhausted in every sense of the word.
Honestly, on days like this I fantasize about a Layla who was never exposed to drugs in her birth mom’s womb. I dream about a Layla who doesn’t struggle with dark moments in private. My mind drifts to what it would be like without a world of Neurological testing, Occupational Therapists, Psychiatric visits and medications under our belt. The doctor says scarier things than she used to. Like how to look for signs of bipolar disorder. I feel ill-equipped. But the moment I catch myself thinking this way, I stop myself. God has assigned Layla her portion and cup. And he has assigned me mine, too. And if I acknowledge that He is good, (He is, by the way) then I must acknowledge that what He allows is for our eternal good as well. We can do this. One day at a time.
It’s just that it gets so lonely. To most of the world she appears normal. The well-meaning “She seems fine to me” comments are like a punch in the gut. I am grateful that you have never seen the scary side of her and yet simultaneously frustrated that you do not understand. On the other hand, if you HAVE seen that side of her, I am terrified you will compare her to her brother and sister and somehow view her as less. Is there a way for you to recognize she is different without treating her that way? I’m not sure.
Before the night is over she is completely back to normal. And our aching hearts are already on the mend. We have been there/done that too many times before. We may go months before we see anything like this again, or tomorrow may bring another day of pain. We just never know. But we carry on. We know that even when Layla is at her worst, she is the most incredible gift. And when she is at her best, there is not a greater feeling in the world. I wouldn’t trade her or change her for anything. Her story is beautiful and she is a fighter.
P.S.-Give grace to the family with the kicking and screaming child walking out of the store. Yes, that child may be a spoiled, entitled, brat. But that child could also be the most pleasant, well-behaved, sweet thing who fights the hardest, darkest battles behind closed doors. And her Mommy and Daddy might be afraid and overwhelmed. One smile and nod can remind us that we are not in the trenches by ourselves. Assign positive intent. It makes all the difference.